The Enduring Self in People with Alzheimer's: Getting to the Heart of Individualized Care

The Enduring Self in People with Alzheimer's: Getting to the Heart of Individualized Care

by Sam Fazio, Stephen Post

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“. . . an outstanding contribution to a growing literature that will change the way we age in the 21st century.”
—Peter Whitehouse, M.D., Ph.D., and Danny George, M.Sc., authors of The Myth of Alzheimer’s
“This book will help move us to better and better care practices in our journeys with persons with dementia.”
—Virginia Bell, M.S.W., co-author of The Best Friends Approach to Alzheimer’s Care
Despite the frequent characterization of Alzheimer’s disease as a “loss of self,” this enlightening book demonstrates unequivocally that a person’s unique self persists through the course of the disease. The important message in The Enduring Self in People with Alzheimer’s is how much can be done in care settings to support a person’s sense of identity, and thereby enrich the lives of people experiencing the many losses associated with dementia.
Drawing from a diverse body of research in multiple disciplines, the book brings together the recommendations of the best thinkers and practitioners to illustrate the meaning of self and the importance of providing dementia care that recognizes and supports personhood. Translating research into practice, the author provides strategies for restructuring the physical and social environment to facilitate person-centered care. Administrators and staff will also learn how to reframe communication and interactions to build more meaningful relationships with people with Alzheimer’s.
Provocative discussion topics at the end of each chapter and a detailed case study can be used in staff training to encourage the changes in attitude and practice that will make care strategies more person-centered. The resource also provides an action plan for applying this individualized care philosophy at an organizational level.
Appropriate for all settings providing dementia care, The Enduring Self in People with Alzheimer’s is a vital tool for ensuring personhood is maintained and respected throughout the course of the disease.

Product Details

ISBN-13: 9781938870668
Publisher: Health Professions Press
Publication date: 04/14/2016
Sold by: Barnes & Noble
Format: NOOK Book
Pages: 192
File size: 2 MB
Age Range: 17 - 18 Years

About the Author

Sam Fazio, Ph.D., is Director of Special Projects at the Alzheimer’s Association. Dr. Fazio has worked for the national headquarters of the Alzheimer’s Association since 1994 in a variety of areas, including Education and Training and Program Services. He currently works in the Constituent Services area where he oversees quality evaluation standards and social/behavioral research initiatives. Dr. Fazio has also been involved in several research projects with older adults in the Chicago area related to the persistence of self, person-centered care, and health and wellness. Additionally, Dr. Fazio is a part-time faculty member in the gerontology program at Northeastern Illinois University in Chicago.
Dr. Fazio received his doctorate in developmental psychology from Loyola University Chicago. Prior to working for the Alzheimer’s Association, Dr. Fazio worked at Rush Presbyterian St. Luke’s Medical Center in its Alzheimer’s Family Care Center, an adult day center specifically designed for people with dementia. He has worked in the field of aging since 1987 and has a broad range of experience, including research, leadership and management, working with older adults and families, and direct care.
Dr. Fazio has presented both nationally and internationally as well as published several journal articles and book chapters. Dr. Fazio is also the co-author of the book Rethinking Alzheimer’s Care (Health Professions Press).

Table of Contents

About the Author     vii
Foreword   Stephen Post     ix
Preface     xi
Acknowledgments     xiii
Introduction     1
A Framework for Understanding the Self in Alzheimer's Care
The Self as the Core of Person-Centered Care     5
Overview of Self     33
Overview of Alzheimer's Disease     43
Evidence of the Self in Alzheimer's Disease     57
Essential Elements of Care that Support Selfhood
Physical and Social Environments that Recognize the Self     75
Relationships and Interactions that Support the Self     99
Key Concepts for Maintaining the Self
Supporting the Self in Everyday Care     115
Sharing the Self with Others     133
Research Method and Results     149
References     157
Recommended Readings     165
Index     169

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